Israel offers advanced interventions for drug-resistant West syndrome through neuromodulation, surgery, and compassionate access pathways. Patients can access vagus nerve stimulation (VNS), deep brain stimulation (DBS), and specialized ketogenic diet protocols. Specialized pediatric neurologists also provide investigational treatments like ganaxolone and pharmaceutical-grade cannabidiol (CBD) oils.
- Neuromodulation therapy: Vagus nerve stimulation (VNS) helps reduce seizure frequency when medications fail.
- Surgical interventions: Functional brain mapping identifies specific seizure focal points for surgical resection.
- Compassionate use: Investigational drugs like ganaxolone are accessible via formal Ministry of Health pathways.
- Advanced diagnostics: Pharmacogenetic testing helps doctors select medications based on a child's genetic profile.
Bookimed Expert Insight: While most clinics focus on standard protocols, Sourasky Medical Center stands out for its technological innovation in pediatric epilepsy. Dr. Uri Kramer at Sourasky developed a specialized seizure-detecting bracelet for children. This highlights a shift toward using wearable tech alongside traditional treatments to improve safety and monitoring for West syndrome patients.
Patient Consensus: Parents recommend recording video of spasms to show neurologists and suggest pushing for a ketogenic diet trial early. Many families note the effectiveness of VNS after multiple medication failures but advise preparing for potential waitlists for non-urgent procedures.